Syngap Research Fund - SYNGAP1 on Instagram: "It's not too late to Sprint! Set up your team! Raise funds! Help #CureSYNGAP1! For more information, go to cureSYNGAP1.org/Sprint 🏃 #SYNGAP1 #Sprint4Syngap"
Syngap Research Fund - SYNGAP1 on Instagram: "It's not too late to …
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Syngap Research Fund - SYNGAP1 on Instagram: "Rare Diseases affect people's day to day lives, and many still don't have a name for them. Today, we bring awareness to these diseases, especially #SYNGAP1! Every day, SRF is working hard to #CureSYNGAP1! rarediseaseday.org cureSYNGAP1.org #RareDisease #RareDiseaseDay"
Syngap Research Fund - SYNGAP1 on Instagram: "Rare Diseases affe…
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Syngap Research Fund - SYNGAP1 on Instagram: "RDD25 - Federal Funding - Hope vs Despair? Disability is Political. Take it or Advocate? #S10e163 Friday, February 28, 2025 - Week 9 Hope vs. Despair? Despair: NIH Cuts NBC https://www.nbcnews.com/science/science-news/trumps-nih-budget-cuts-threaten-research-stirring-panic-rcna191744 NYT https://www.nytimes.com/2025/02/25/briefing/president-trump-vs-medical-research.html?unlocked_article_code=1.0U4.-7WW.F3yrk2tjpLJe&smid=url-share FDA Staffing Cuts h
Syngap Research Fund - SYNGAP1 on Instagram: "RDD25 - Federal F…
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Syngap Research Fund - SYNGAP1 on Instagram: "Save Medicaid: A Critical Moment for Our Loved Ones - #S10e165 Tuesday, March 11, 2025 - Week 11 Special guest host, Monica Meyer, SYNGAP1 mom to Michael, advocate & educator Please give my video a watch and SAVE MEDICAID! Do it as if your child's life depends on it. I want to emphasize the importance of the current moment regarding Medicaid, not to alarm you, but to underscore the urgency of the situation. This is a critical time for the well-being
Syngap Research Fund - SYNGAP1 on Instagram: "Save Medicaid: A …
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Syngap Research Fund - SYNGAP1 on Instagram: "#SYNGAP1 caregivers willing to submit home videos of seizures or seizure-mimicking events, ages 3 months - 35 years old. If you have a video, sign up now! Details -- cureSYNGAP1.org/NYU @nyulangone #cureSYNGAP1 #Studies"
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Syngap Research Fund - SYNGAP1 on Instagram: "2025 is the year we double down on SYNGAP1. Tune in now. - #S10e157 Friday, January 10, 2025 NEWS Census = 1,530! https://cureSYNGAP1.org/Census https://cureSYNGAP1.org/NL42 All 2024 Science Conference videos (27 total) are now on our website and organized in this blog: https://cureSYNGAP1.org/SC24 Pods, listen to this: https://curesyngap1.org/podcasts/syngap1-stories/zoe-bailey/ AES JW - Everybody who was at AES felt the temperature change. Things a
Syngap Research Fund - SYNGAP1 on Instagram: "2025 is the year w…
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Dan Tehan on Instagram: "One day to go! @portfairymarathon @syngap_research_fund_australia #portfairy #syngap1research"
Dan Tehan on Instagram: "One day to go! @portfairymarathon @syng…
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