Syngap Research Fund - SYNGAP1 on Instagram: "Rare Diseases affect people's day to day lives, and many still don't have a name for them. Today, we bring awareness to these diseases, especially #SYNGAP1! Every day, SRF is working hard to #CureSYNGAP1! rarediseaseday.org cureSYNGAP1.org #RareDisease #RareDiseaseDay"

Syngap Research Fund - SYNGAP1 on Instagram: "RDD25 - Federal Funding - Hope vs Despair? Disability is Political. Take it or Advocate? #S10e163 Friday, February 28, 2025 - Week 9 Hope vs. Despair? Despair: NIH Cuts NBC https://www.nbcnews.com/science/science-news/trumps-nih-budget-cuts-threaten-research-stirring-panic-rcna191744 NYT https://www.nytimes.com/2025/02/25/briefing/president-trump-vs-medical-research.html?unlocked_article_code=1.0U4.-7WW.F3yrk2tjpLJe&smid=url-share FDA Staffing Cuts h

Syngap Research Fund - SYNGAP1 on Instagram: "Save Medicaid: A Critical Moment for Our Loved Ones - #S10e165 Tuesday, March 11, 2025 - Week 11 Special guest host, Monica Meyer, SYNGAP1 mom to Michael, advocate & educator Please give my video a watch and SAVE MEDICAID! Do it as if your child's life depends on it. I want to emphasize the importance of the current moment regarding Medicaid, not to alarm you, but to underscore the urgency of the situation. This is a critical time for the well-being