Rare Disease Awareness: Tuba1a Peter Winston's Journey
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Rare Disease Awareness: Tuba1a Peter Winston's Journey
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TikTokmellorfamily
¿Qué es tuba1a?
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¿Qué es tuba1a?
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YouTubedelafatigalarte
#tuba1a #disability #braindefects #geneticmutation #miracle #perfectpeter
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#tuba1a #disability #braindefects #geneticmutation #miracle #perfe…
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YouTubeThe Mellor family
Cheyenne Mellor on Instagram: "Peter was born with a genetic mutation called TUBa1a, severe brain defects, and partial paralysis in all four limbs (quadriplegic cerebral palsy). He didn’t hold his head up until close to a year. He started sitting unassisted at 18 months. He rolled over completely for the first time at 20 months. He is now 21 months old and has started STANDING with assistance!!! #perfectpeter #peterwinston #cerebralpalsy #disabled #medicaljourney #tuba1a #braindefects #medically
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Cheyenne Mellor on Instagram: "Peter was born with a genetic mu…
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Instagramthe.mellors
7-Month-Old Peter's Journey: Tackling Chromosome 12 Brain Defects
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7-Month-Old Peter's Journey: Tackling Chromosome 12 Brain D…
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TikTokmellorfamily
Replying to @hesnofriendofours #tuba1a #tubulinopathy #microcephaly #epilepsy #specialneedsmom #realisticmomlife #medicalmom #toddlermom #storytime #pregnancy #anatomyscan #ultrasound #prenatal #obgyn
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Replying to @hesnofriendofours #tuba1a #tubulinopathy #microce…
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TikTokmagmatthews_
Replying to @gund #tuba1a #tubulinopathy #cerebralpalsy #microcephaly #gtube #specialneeds #specialneedsmom #disabilityadvocate #raredisease #blind #cvi #medicalmom
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Replying to @gund #tuba1a #tubulinopathy #cerebralpalsy #m…
1 年前
TikTokmagmatthews_
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I’ve been so inspired by @Poppy&Kaylee to continue shari…
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TikTokmagmatthews_
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2 years ago! #plagiocephaly #feedingtube #tuba1a #throwbac…
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YouTubeThe Mellor family
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#disability #creativity #tuba1a #cerebralpalsy #perfectpeter #upli…
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TikTokmellorfamily
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They met today but their bond began years ago when she was pr…
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YouTubeThe Mellor family
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😭😭I love her so much. #agenesisofthecorpuscallosum #…
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FacebookCheyenne Mellor
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#braindefects #perfectpeter #tuba1a #dachshund
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YouTubeThe Mellor family
46:47
Cyanotic Congenital Cardiac Defects: Diagnosis & Therapy by …
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YouTubeOPENPediatrics
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Today is #rarediseaseday and as you know, Peter is as rare as they …
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FacebookPerfect Peter
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Her expression at the end! 🥹 #tuba1a #babiesoftiktok #cutebaby #disabi…
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TikTokrottinghag
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Rare Type 1a Supernova Progenitor System Observed
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YouTubeBerkeley Lab
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“Petey and Pup” are back! #perfectpeter #tuba1a #cerebralpa…
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TikTokmellorfamily
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From BABY to BIG KID 🥺 #perfectpeter #braindefects #tuba…
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YouTubeThe Mellor family
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#perfectpeter #happyvibes #goodvibesonly #braindefects #tu…
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YouTubeThe Mellor family
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#uplifting #disability #positivity #wheelchairuser #cerebralpalsy #…
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YouTubeThe Mellor family
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🥹 unbelievable #wheelchairuser #uplifting #cerebralpalsy #tuba1a
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YouTubeThe Mellor family
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He is the sweetest human. #perfectpeter #tuba1a #braindefec…
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YouTubeThe Mellor family
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A little blog from Rosemary’s 18 month wellness visit today. #toddl…
已浏览 563 次2022年12月10日
TikTokrottinghag
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PETER IS LEARNING TO CRAWL 🥹 #love #goodnews #cerebralpalsy …
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YouTubeThe Mellor family
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All about the Tuba!
已浏览 7万 次2018年11月13日
YouTubeTrent Hamilton
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Peter, the King of Kisses. #perfectpeter #tuba1a #disabled #…
1 个月前
YouTubeThe Mellor family
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Consistent Range on the Tuba - The 6 Fs From High to Low
已浏览 5591 次2020年3月5日
YouTubeTuba Practice Log
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Today’s feeding therapy consisted of an apple/peach purée bath😅 He li…
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FacebookPerfect Peter
静态缩略图占位符