2021年9月2日 · I have FGFR3 levels which are 1000 points over normal. The SFN pain is debilitating. Was told IVIG will ...

I was recently diagnosed with the FGFR3 ANTIBODY GENE. It is RARE. My Neurologist found this by sending my blood sample to a special St. Louis lab.

I was recently diagnosed with the FGFR3 ANTIBODY GENE. It is RARE. My Neurologist found this by sending my blood sample to a special St. Louis lab. This means my NEUROPATHY is being caused by this ANTIBODY which up till this discovery, my neurologists said my cause for neuropathy and gastroparesis was UNKNOWN! I don't have diabetes. 1.

2017年7月21日 · Hi Emo, my fellow FGFR3-er, makes me feel better that I am not alone suffering from this neuropathy thing. IVIG - I had two rounds, multiple sessions in each round. First one was Gamunex-C, after multiple infusions, I got the Egyptian plagues reaction, I was visiting at the same time the cardiologist, the pulmonologist, the dermatologist and of ...

2017年7月21日 · I was recently diagnosed with the FGFR3 ANTIBODY GENE. It is RARE. My Neurologist found this by sending my blood sample to a special St. Louis lab. This means my NEUROPATHY is being caused by this ANTIBODY which up till this discovery, my neurologists said my cause for neuropathy and gastroparesis was UNKNOWN! I don't have diabetes. 1.

2020年6月5日 · Clinical characteristics of fibroblast growth factor receptor 3 antibody‐related polyneuropathy: a retrospective study --- "… fiber neuropathy associated with FGFR3 and TS-HDS may provide further evidence regarding …(INCAT group), Clinimetric evaluation of a new overall disability scale in immune mediated …

2024年6月25日 · Other treatments for FGFR3+ small fiber neuropathy are plasmapherisis and steroids. But because there’s such little evidence, it’s been my experience that very few neurologists are either (a) familiar with the FGFR3 autoantibody or (b) feel comfortable with the treatment strategies I mentioned above.

2022年6月29日 · Where did you get testing done for the FGFR3 and TS HDS antibodies? Can any lab do it? I requested these tests from my neurologist at Hopkins and he’s never heard of them. Said he didn’t know where to get me tested for it. I’ve been dealing with neuropathy since my first Pfizer vaccine 9 months ago.

2024年6月25日 · I have had an undetermined autoimmune disease for over 15 months. My Neurologist did not want to address the underlying cause of Small Fiber Neuropathy. Neuromuscular blood work for FGFR3 antibody was 7,500. ANA was 1:320, but recent test was negative. I have gone from good days and bad days to almost all bad days. Primary symptom …

My Oncologist recently requested another Signaterra ctDNA test to monitor my brain necrosis following radiation 9 months ago.