Know Rare Launches HealthStoryAI App for People Living with Rare Disease
Know Rare launches HealthStoryAI app for people living with rare disease, leveraging the latest natural language processing ...
Pulmonaryhypertensionnews.com7 小时
Organizing health information is crucial to rare disease management
Columnist Jen Cueva talks with caregiver Ryan Sheedy about an app that can help parents and caregivers with rare disease management.
Philippine Daily Inquirer1 天
PhilHealth expands benefits to cover rare diseases, mobility devices
The Health Insurance Corp. (PhilHealth) will expand its healthcare packages before the end of the year to cover rare diseases ...
Rare disease diagnosis strengthens bond between twin sisters: ‘Doing our best’
After Natalie Rex was diagnosed with Friedreich’s ataxia -- a rare genetic and usually fatal neurological disease -- her twin sister, Melanie, became her roommate and caregiver.
Inquirer on MSN1 天
PhilHealth to cover rare diseases, mobility cases
The Philippine Health Insurance Corporation (PhilHealth) on Tuesday announced that it will soon expand its coverage to rare ...
openaccessgovernment2 天
The EU’s next steps for an action plan on rare diseases
The European Economic and Social Committee (EESC) urges the EU to adopt a new approach to tackling rare diseases ...
Theratechnologies expands rare disease portfolio with Ionis partnership
Theratechnologies gains exclusive rights to two investigational RNA-targeted medicines from Ionis Pharmaceuticals, olezarsen ...
NOLA.com10 天
Louisiana mother advocates for the rare genetic disease that killed her 7-year-old son
"The grief spiral and the odyssey of trying to figure out what the problem is takes a really big toll on families." Baton ...
ScienceAlert on MSN9 天
A Rare, Fatal Skin Disease Has Been Cured in Patients For The First Time
A rare and potentially fatal skin infection with nightmarish outcomes may soon have a cure.
Tahlequah Daily Press12 天
Cherokee Nation summit focuses on rare diseases
The Cherokee Nation held its first Rare Disease Summit Nov. 21, when health care professionals, specialists and members of ...
Cluster of farmworkers diagnosed with rare animal-borne disease in Ventura County
A cluster of workers at Ventura County berry farms recently have been diagnosed with a rare disease often transmitted through ...
Cherokee Phoenix5 天
Cherokee Nation hosts inaugural Rare Disease Summit
Cherokee Nation and its health officials held its first Rare Disease Summit Nov. 21 to help bring together healthcare ...