Live Science on MSN13 天
Stone man disease: A rare condition that causes a person to grow a second skeleton
Fibrodysplasia ossificans progressiva (FOP) is an extremely rare congenital condition that causes the body to grow a second ...
Study identifies the main culprit behind flare-ups in a rare genetic disorder
Through a series of cell and animal studies, a research team has identified the principal culprit causing flare-ups in ...
Nature2 年
Landmark study completed for ultra-rare bone-forming disease
Fibrodysplasia ossificans progressiva (FOP) is an ultra-rare genetic disorder that turns soft tissue to bone. A recently completed multi-year study will finally provide doctors the information ...
Greek Reporter13 天
The Rare Condition Where the Body Builds a Second Skeleton
Stone man disease is a rare condition that causes the body to build a second skeleton, transforming soft tissue into bone.
pharmaphorum2 年
After FDA setback, Ipsen gets first OK for rare disease drug palovarotene
Health Canada has given the drug a green light – under the Sohonos brand – to treat fibrodysplasia ossificans progressiva (FOP), making it the first treatment for the ultra-rare genetic disorder.
pharmaphorum10 天
Ipsen's rare disease drug palovarotene knocked back in EU
Ipsen has suffered a setback in its marathon effort to bring palovarotene to market for ultra rare disease fibrodysplasia ossificans progressiva ... would be the first treatment that aims to ...
BMJ6 年
P-44 Myositis ossificans traumatica: a consequence of an early return to training?
1 Centro Hospitalar de Entre o Douro e Vouga – Physical and Rehabilitation Medicine Department – Santa Maria da Feira, Portugal 2 Physical and Rehabilitation Medicine – Portugal Myositis ossificans ...