Epidermolysis Bullosa, also known as "butterfly disease," is a rare genetic condition. This congenital disease lets the skin be as fragile as those of butterfly wings. Affected patients can ...

Champion Ironman Matt Bevilacqua has opened up about his incredible IVF journey to fatherhood and the cutting-edge technology ...

"This disease... it's the cruellest ... treatments that could improve the quality of life for people with butterfly skin. Andy described epidermolysis as a "brutal" condition.