The only drug that treats children with a rare degenerative disease called Batten disease could be withdrawn within the next few months if negotiations over its price fail. Batten disease ...

James Murray is running the Inverness Half Marathon next month to support Sophie’s Story, set up for little Sophie Mason who ...

On the GoFundMe page Andrew wrote: "There are 13 variants of Batten disease, CLN1-CLN13. Jeffrey has CLN2, which is the only variant that children receive treatment for however, not to cure ...